Welcome
Friday, June 10, 2011
Enough time off and back to work...
However once back into San Diego, it was straight back to appointments this week, and a long week it was. Looking forward to a great deal of time walking,with my sockets fitting well, and no other priorities I got my first full week in. Both prosthetics and physical therapy had me doing endless laps in the parallel bars and with solo-step (basically strapping me in a harness and attaching it to the ceiling). I still barely know what i'm doing, and every muscle in my body is burningly sore. Nevertheless it felt unbelievable to be up and working on it. Not that the week was without difficulty, I did manage to have a hell of time going through methadone withdrawals. It is a necessary evil, but definitely a made for a rough week (for evidence ask Aaron or my dad). Of course adding to the pain was watching the Canucks lose Games 3 and 4. But at least the Game 5 win matched my better mood nearing the end of thee week, now if could just forget my body is aching I'd be good.
Everything-Must-Go Garage Sale
This weekend will complete the Riley's move to San Diego. Tomorrow (Sat. June 11th; 7am-2pm) will be the one-day Everything-Must-Go Garage Sale at the house (7613 W. Quarto Ave., Littleton, CO, 80128). Then drop off leftovers to Goodwill and then load a second truck with remaining items going to the apartment in San Diego. We leave Sunday afternoon to drive the 1100+ miles.
We are expecting, and excited about, a special guest that may come by the garage sale and wish us well on our adventure.
We are all exhausted from sorting, packing, and loading. We look forward to being together as a family again.
We are also looking forward to seeing our son, Tristan, who graduates from US Marine bootcamp (at MCRD, San Diego) in a week! on June 17th! Pray for the successful completion of The Crucible this weekend!
Dad
ps - we are moving into a small one-bedroom apartment near Daniel's.
Neil & Julia Riley
2488 Hilton Head Place
Apt 1119
El Cajon, CA
92019
wanderingbutnotlost@msn.com
Thursday, May 26, 2011
9 News
Wednesday, May 25, 2011
Back on my feet again!
Enough said, here is the video ....
Daniel's new apartment (May 6, 2011)
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| Daniel receiving keys from Cpt. Fred Gorris (USN. ret), head of VHI |
It is in a wonderful apartment complex in the Rancho San Diego area (near El Cajon, CA). It has many services, stores, and a Starbucks within wheelchair distance and is only a 20-25 minute drive from the hospital. Through some generous people and Veterans Housing Initiative (VHI) he was given the opportunity to get a one-bedroom apartment and a hugely reduced rate. VHI also completely furnished it and made sure he had all the supplies the needed - especially in the kitchen where Daniel loves to spend time cooking.
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| "Hmmm... what to grand cuisine should I make first? Miso-glazed sea bass and asparagus or ramen noodles?" |
It affords him enough room to be on his own and be comfortable (and for dad to have a closet and a sleeper-sofa). Daniel is very thankful to be out of the hospital barracks (where no one gets healthy again!).
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| Dad's closet (it took his inner "McGyver" to make it work) |
Monday, May 23, 2011
Riley Family Relocating
- I have communicated briefly with Bishop O'Neill that I will not be returning to my ministry with the people of the Diocese of Colorado and Cathedral Ridge. After almost 12 years, this was a hard thing to do! I will miss being part of the exciting future of Cathedral Ridge.
- Daniel and I will be in Colorado until the Danielathlon (June 4th) and then over the next couple weeks we will get our belongings to San Diego and into storage. We hope to be all there by Tristan's graduation from marine boot camp (June 16-17).
- We will be having a BIG garage sale on June 10th and 11th.
- Due to the gracious financial support of so many we have enough funds to cover the move via U-Haul, rent, and living expenses until the end of the summer. We want to give a special thank you to The Rev. Brooks Keith and the Episcopal Church of the Transfiguration, Vail, who have pulled together people and resources to assist Daniel and our family. We are also very thankful for the support of our immediate and distant family members. In the meantime, Julia and I will both begin looking for work that helps us cover our expenses and also make sure we are available as needed for Daniel.
- We have secured a one-bedroom apartment for Julia and I in the same complex as Daniel's new apartment. Aaron will come with us for the summer and try and find work. He will live with Daniel during that time. Aaron has been accepted, and hopes, to attend the University of Colorado, Boulder, in the Fall.
in Christ,
Neil Riley
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Friday, May 20, 2011
Danielathlon
We look forward to seeing you all. :)
........ Caitlin said...
The 1st annual Danielathlon will be June 4 at Dekoevend Park in Littleton from 11-2. It's called the Danielathlon because it's going to be ten events and games like a triathlon but kicked up a notch! We're going to have soccer goal shoot outs, lawn bowling, shoe kick, water balloons and other awesome competitions- with a prize for the winner of each of course!
The event will be free to attend but donations will be heavily emphasized. We will also be selling hand screen pressed t-shirts, food and having a raffle for some wonderful door prizes.
Please visit facebook.com/danielathlon for more info. We're working on getting a website up and running to be able to register and should have a logo and printed materials in the next two weeks.
I know all of you love Daniel as much as I do so if you are in the Denver area, please come out and show your support. And pass it on to everyone you know!
Caitlin
Thursday, May 19, 2011
#22 Went Better than Expected
Yesterday's surgery went much better than expected. After a quick time in recovery Daniel was up and ready to get out of the hospital and head to his apartment. In fact, he was in a pretty big hurry to get out of there. At first I was wondering, why the urgency. Was he sick of hospitals? Was it the food? Was he tired or hurting? Nope, none of the above. The Vancouver Canuck's playoff hockey game was starting soon. He was lounging at the apartment watching the game with a drink, a salad and a pizza pocket before the first period had competed 5 minutes.
Surgery #22 complete and he is hoping not to have any more. So, one wonders, do these guys get some kind of frequent flyer points for these surgeries? How about one free after each ten surgeries? Or maybe a parting gift after every five? How about an all-expenses paid cruise for four people after you reach 20? Or how about one dollar's worth of travel on Expedia for every stitch? I'm just saying .....
Wednesday, May 18, 2011
Surgery #22
Well it came as a surprise and a disappointment. Daniel has had to go back into surgery to follow up on some work that was done in surgery #21 (May 2nd). He has gone in today and will go home tonight. It was a real blow to Daniel when he was told this on Monday. But, we are now getting used to the ups and downs.
Thursday, May 5, 2011
Finally, some food
No. Really?!?
Julia then said, "Hey, this will be the first day you have not seen Daniel since December 24th".
I replied, "No. Really?!?". Then I thought about it and "Yes, really".
Not too sure what to make of that!
Dad
New Address
Daniel Riley
1004 - 2452 Hilton Head Place
El Cajon, CA,
92019
Feeling just plain old miserable
However, he still feels miserable. He went without eating or drinking (even water) from Sunday night until Wednesday. The medical staff finally gave him some juice and chicken broth. He was unable to keep it down. He is trying to have some again today. Needless to say he is very tired and weak and feeling yucky! He still hurts as well and the tv in his room doesn't have the channel with the NHL playoffs. On the bright side, he did get a "Super Patient" sticker from the nurses. We hope he will be discharged soon.
Sunday, May 1, 2011
A few changes coming this week.
After he gets out (likely late in the week) he will be moving to his new apartment. Through the generosity of Capt. Fred Gorris (USN-ret) and the organization he heads up, Veterans Housing Initiative, Daniel has been set up with a nice one-bedroom apartment only a 15-20 minute drive from the hospital. They have secured the unit for him at a very low cost for up to two years, are helping to furnish it, and offer other support to assist in his healing. It is near shopping, theaters, Starbucks, grocery stores, etc. (Alas, no bookstore nearby). This a wonderful opportunity to get back into "normal" life and to get out of the barracks. The barracks at the hospital are not a place to get healthy. They are conveniently close to his appointments - but that's all!
I will be staying on his couch and helping out as necessary. That will involve lots of driving until he gets his car adapted and he has taken the adapted driving training. Julia is coming out to San Diego today for a few days to see Daniel and help set up his new place - no doubt, adding a mother's touch.
Dad
Thursday, April 21, 2011
Support
** help set up Daniel's new apartment (good news on that coming soon); funds need to arrive by Monday, May 2nd - thanks. (memo note - Daniel Riley)
Veterans Housing Initiative (VHI), 501 W. Broadway, Suite A-306, San Diego, CA, 92101
Thank you!!
Wednesday, April 20, 2011
PT (Physical Therapy)
Wednesday, April 13, 2011
Fundraising Breakfast
LCpl Daniel Riley Support Breakfast
Saturday, April 23rd, 8-11am
Columbine High School - commons room
6201 S. Pierce St., Littleton, Colorado, 80123
For more information feel free to contact Kerry Huntington - huntington57@yahoo.com (he has been Daniel's neighbour and his brothers have hung out with their boys for a number of years)
Donations are still going through:
Daniel Riley Fund
c/o The Episcopal Church of the Transfiguration
PO Box 1000
Vail, CO, 81658
Surgery #21 scheduled
He goes into the hospital on Sunday May 1st for surgery the next day. The main surgery will be the reversal of the colostomy. Yahoo!!! We are very grateful that he is a candidate for it - there are many guys who keep it for life. He is likely to be in the hospital for all week and leave with a wound-vac and catheter. Yuck! They will "piggy back" a couple other procedures while he is out under the anesthetic.
He has had to do a few procedures and tests before this next time "under the knife." One of these yesterday was VERY unpleasant. He had a bad reaction to some medication and it caused him to be in a great deal of pain. Daniel described his pain level at a 7 or 8 out of 10! That was the worst pain since back at Bethesda Naval Hospital. Doing okay now, but it took a lot out of him. Resting today.
He is already looking forward to his next leave which is planned for the end of May for a couple weeks for Aaron's graduation (May 28th) and the Danielathlon (June 4th).
Tuesday, April 12, 2011
Road Trip
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| Arches National Park, Utah |
Daniel bought his new vehicle and was excited to do a road trip. Packing wheelchair, prosthetics, and the personal luggage for Aaron, Daniel, Julia, and Neil in the Land Rover was a challenge. The further we went on the trip the better and faster we all got at stuffing things in, and on top of, the car. That being said, it was a nice vehicle for a road trip. "California, here we come ...."-
The next day was a trek through the eastern deserts Utah and wide expanses of northern Arizona to the Grand Canyon. A little stop along the way for some pictures allowed for a little off-roading, that kept causing Julia to fear that we would tip over or get stuck. We enjoyed seeing the Grand Canyon (south rim), especially with the special drives to areas afforded wheelchairs normally only accessible by shuttle busses. Daniel got close to edges courtesy of his brother carrying him beyond the confines of the paths. Sunset was pretty, but cold!
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| Daniel at the edge of the Grand Canyon |
But, we found ways to have fun, found a show for Aaron and Daniel (Cirque de Solei, Ka, at the MGM), enjoyed some good and plentiful buffets, saw some sights, Daniel enjoyed the poker tables, and we learned to manage the limitations.
After two nights in Sin City we headed off through the deserts towards the coast. We detoured (Aaron doing much of the driving) through the Mojave Desert, near Twenty-Nine Palms (Ughh!!!), and a quick visit to Joshua Tree National Park. Neil took over driving and we pushed on through a gorgeous sunset to Anaheim. After learning about the travails of Vegas we got a hotel across the street from the main gate of Disneyland.
We decided that the best way for us to enjoy Disneyland, not have to rush, and to allow Daniel times to rest, we would visit the place over three days. That was a wise decision. We could wake up late, go back to the hotel for breaks, take leisurely lunches out of the park, return when we wanted, and rush to hit every ride in a short period of time. Disneyland and Disney's California Adventure were very wheelchair friendly and compact enough to get around easy enough. Everyone had a great time and we hope to be back soon. :-)
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| Three goofies! |
The road trip concluded with a leisurely drive down the southern California coast. Our last night Julia and Neil were able to get a nice hotel along the waterfront in San Diego while Aaron stayed with Daniel in the barracks. We all had a really nice time. We are very thankful to some kind people who gave us some resources and helped made this road trip possible. Thank you.
Saturday, April 9, 2011
Pain Wars: The Phantom Menace
Surgical pain is that pain that he experiences much like most of do when we get hurt. These are nerve and muscle pain that we experience from direct trauma to our body. This is the easy pain to understand and communicate with others. You know the kind: a stubbed toe, and broken bone, a torn achilles tendon, the hurt after having surgery, etc. It varies in intensity and we all handle it in different ways. Daniel had a great deal of this pain early on. This is not really an issue any more. Medication and time have healed most of that pain. Right now he has it due to his recent ear surgery. He says it feels like someone shoved a pencil in his ear - ouch!
The second, and more elusive, group of pain is Phantom Limb Pain.
Phantom Limb Pain is the sensation that an amputated or missing limb (even an organ, like the appendix) is still attached to the body. Approximately 60 to 80% of individuals with an amputation experience phantom sensations in their amputated limb, and the majority of the sensations are painful. The missing limb often feels shorter and may feel as if it is in a distorted and painful position. Occasionally, the pain can be made worse by stress, anxiety, and weather changes. Phantom limb pain is usually intermittent. The frequency and intensity of attacks usually decline with time. The introduction and regular use of prosthetics greatly reduces the sensations.
Daniel felt this sensation early on in his recovery and as surgical pain subsided the phantom pains became worse. He feels it more when stressed and when he is cold. He rarely feels it with his fingers, but he is in a constant battle with phantom leg pain. Granted, it is less and more controlled than it has been. Early on he felt like his legs were continually sticking straight out. He has said that he pain is sometimes like someone is stabbing a knife into his foot or knee. Other times it is like putting his foot into a fire. It is a constant nagging companion that sometimes spikes into an unbearable menace.
There is no easy answer or remedy for the kinds of pain Daniel has dealt with over the past few months. Phantom pains are treated in many different ways. Drugs are one way to control it. That usually entails a mixture of different kinds and levels of medications. The concoction varies from person to person. For one Percocet is an important drug, for others it may Methadone, Oxycoton, Pamelor, Morphene, or Lyrica. More than likely it is a combination of these. Daniel is past the Dilaudid and Ketamine stage (two VERY powerful drugs) and is slowly lowering his need for his combination of other drugs.
Beyond drugs there are a whole variety of other remedies that have varying levels of effectiveness.
Here are a few ….
Please continue to pray for Daniel’s recovery and eventual end to his pain.
Wednesday, April 6, 2011
Surgery #20 - Tympanoplasty
Today - main thing on the schedule is a procedure at radiology to look things over inside before they set a date for the colostomy reversal. He is not up to doing PT today (don't blame him).
He was cheered up a bit by getting a letter from Tristan. He smiles as he thinks about the fact that Tristan is just down the road at bootcamp - feeling just as miserable! Brotherly love???!!???
Dad
Tuesday, April 5, 2011
Back into the routine
Recruit Riley
Recruit Riley, Tristan, N.R.
2nd Bn, Echo Co, Plt. 2103
38001 Midway Ave,
San Diego, CA, 92140-2103









